Showing posts with label Health Care. Show all posts
Showing posts with label Health Care. Show all posts

18 December 2013

Paul Krassner : Is There a Doctor in the House?

Doctors provide free medical care at the Riverside County Fair Grounds in California's Coachella Valley earlier this year. Image from KESQ.com.
California tops in most uninsured:
Is there a doctor in the house?
The insurance industry has a preexisting condition known in technical terminology as greed.
By Paul Krassner / The Rag Blog / December 19, 2013

Although Coachella Valley in Southern California has become synonymous with music festivals, Goldenvoice, the company that produces those events, also helped sponsor the first massive four-day health clinic this year. Free medical, dental, and vision care was provided to nearly 2,500 uninsured patients at the Riverside County Fairgrounds.

According to the California Healthcare Foundation, this state now has the largest number of people without health insurance -- 6.9 million –- more than any state in the country. More than 20% of Californians remain uninsured. Employees in businesses of all sizes are more likely to be uninsured in California than any other state. About 60% of the uninsured population are Latino.

Pamela Congdon, president of the Remote Area Medical’s California affiliate (RAM CA) and Volunteer Coordinator, told me that
The California Association of Oral and Maxillofacial Surgeons (CALAOMS) helps sponsor RAM CA. They allow us to use their office, use our staff, including myself and our Associate Director, without any charges.

I work for CALAOMS, and when I asked if they would help us bring RAM in Northern California, they agreed. Stan Brock asked me to start the affiliate -- RAM CA –- which ran the clinic in Coachella. Please say that the clinic is run by the greatest group of volunteers.
Indeed, over 1,200 general and healthcare professionals volunteered to provide more than 10,000 individual services with more than $1,000,000 in value. Over those four days, 12 hours a day, an estimated 600 custom pairs of eyeglasses were cut, 750 medical exams administered, and 1,300 dental patients treated.

There were 615 general volunteers, 395 dental professionals, 60 vision professionals, and 190 medical professionals of all kinds. There were 1,766 dental patients, 1,435 medical, and 798 vision. One patient hadn’t seen a doctor for 17 years. Of the 2,419 patients, 1,796 were Latino. Oh, yes, and 234 stuffed animals were handed out to children.

One patient sent this message:
My name is Jennifer and I wanted to say thank you from the deepest of my heart! I found out about RAM in Indio at 11 p.m. on Thursday. By 2:30 a.m., I had made my way across the valley, and joined in line with the rest of the people you helped. Not a SINGLE person I interacted with was anything but kind, courteous, and understanding. No one judged us for being there, no one thought we were a burden.

I had all of my wisdom teeth pulled, something I avoided due to an overbearing phobia of dentists in general. Both my dentist and the dental assistant were comforting, and made the procedure almost painless, and fast. I am almost in tears as I write this email, due to the overwhelming gratitude I have for everyone involved in this amazing project that has changed and saved so many lives, including my own.

I’m writing this in the middle of the Open Enrollment time frame, during which my wife Nancy and I finally signed up for a Medicare Advantage plan. Stemming from an old police beating, I use a cane to walk from room to room, and a walker outside the house. The new healthcare plan includes free access to a gym, and I picture myself using my walker on a treadmill.

That image reminds me of a New Yorker cartoon depicting a group of people on stationery bicycles in a park. In the process of enrolling in the Medicare Advantage plan, we were told that we would have to pay a penalty because we hadn't joined a Medicare (or any other “creditable”) prescription drug coverage. We were never informed about that requirement, which began in 2006.

Since we’ve always avoided taking prescription drugs, we never felt the need for it. I called the Health Insurance Counseling Advocacy Program and learned that the penalty would be $32 for each of us. That means $64 every month for the rest of our lives. It seems somewhat absurd and unfair that we could be penalized for not taking any prescription drugs.

Ironically, “This penalty is required by law and is designed to encourage people to enroll in a Medicare Drug Plan when they are first eligible,” yet we had no way of knowing there was such an option to consider. Another irony is that Medicare doesn’t cover any dental procedures, even though rotten teeth and gums can cause internal illness that Medicare does cover.

I asked RAM CA volunteer Dr. Peter Scheer, a world-renowned oral surgeon, about that. His response:
In regard to Medicare and covering dental needs, it has always been an issue. Medicare stands strong in only providing benefits for services that are deemed medically necessary and has always excluded anything related to dentistry, surgical or restorative.

Yes, there are situations where a patient may have an atrocious dental infection that can become life-threatening if not treated. The times where this situation really hits a grey area is when the patient also has other medical issues that may be affected by the infection or contributing to it. Unfortunately, most instances we come across are a decrease in the quality of life due to a poor oral condition rather than a life-threatening event.
However, a research team from Columbia University’s School of Public Health has just released the results of a three-year study of 420 men and women, concluding that the improvement of gum health can help slow the development of atherosclerosis, the build-up of cholesterol-rich plaque along artery walls, which can lead to heart attacks and strokes.

Meanwhile, Goldenvoice has invited RAM CA to return next year. I asked Pamela Congdon, “Will the Affordable Care Act affect that event, or is it too early to tell?” She replied, “The ACA won’t affect the event in terms of people needing service. We are going to have the Borrego Community Health Foundation there to help people sign up for the ACA.”

As inspiring as this year’s four-day free clinic has been, in a truly compassionate culture, there would be no need for its existence.

But the insurance industry has a preexisting condition known in technical terminology as greed. Not to mention the pharmaceutical industry; the annual turnover of revenue for prescription drugs by the top 10 companies is estimated to be worth $700 billion dollars.

In my new Medicare Advantage Enrollment Kit, there are listed a few thousand prescription drugs, from Abacavir to Zyvox. Okay, now cue that soothing voiceover to recite all their side effects, from anal leakage to zits.

As for me, I owe my longevity to never taking any legal drugs.

The above piece was first published on AlterNet and was cross-posted to The Rag Blog by the author.

[Paul Krassner’s latest book, an expanded, updated edition of his autobiography, Confessions of a Raving, Unconfined Nut: Misadventures in the Counterculture, available at Source paulkrassner.com. Read more articles by Paul Krassner on The Rag Blog.]

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25 April 2013

Norman Pagett and Josephine Smit : Can We 'Downsize' and Survive?

Sewers under construction, north bank of the Thames looking west. Image from End of More.
The end of more:
Can we 'downsize' and survive?
We continue to delude ourselves that 'downsizing' will somehow allow us to carry on with our current lifestyle with perhaps only minor inconveniences.
By Norman Pagett and Josephine Smit / The End of More / April 25, 2013
"Healthy citizens are the greatest asset any country can have.” -- Winston Churchill
LONDON -- Faced with inevitable decline in our access to hydrocarbon resources, we read of numerous ways in which we will have to downsize, use less, work less, grow our own food, use goods and services close to home, consume only what we can manufacture within our own personal environment, or within walking distance.

If we are to survive, we must "live local" because the means to exist in any other context is likely to become very difficult. There is rarely, if ever, any mention of the healthcare we currently enjoy, which has given us a reasonably fit and healthy 80-year average lifespan.

There seems to be a strange expectation that we will remain as healthy as we are now, or become even healthier still through a less stressful lifestyle of bucolic bliss, tending our vegetable gardens and chicken coops, irrespective of any other problems we face.

And while "downsizing" -- a somewhat bizarre concept in itself -- might affect every other aspect of our lives, it will not apply to doctors, medical staff, hospitals and the vast power-hungry pharmaceutical factories and supply chains that give them round the clock backup.

Nor does downsizing appear to apply to the other emergency services we can call on if our home is on fire or those of criminal intent wish to relieve us of what is rightfully ours. Alternative lifestylers seem to have blanked out the detail that fire engines, ambulances and police cars need fuel, and the people who man them need to get paid, fed, and moved around quickly.

In other words "we" can reduce our imprint on the environment, as long as those who support our way of life do not. Humanity, at least our "Western" developed segment of it, is enjoying a phase of good health and longevity that is an anomaly in historical terms. There is a refusal to recognize that our health and well-being will only last as long as we have cheap hydrocarbon energy available to support it.

Only 150 years ago average life expectancy was around 40 years and medical care was primitive, basic, and dangerous. Children had only a 50/50 chance of reaching their fifth birthday. Death was accepted as unfortunate and inevitable, but big families ultimately allowed survival of a few offspring to maturity, which gave some insurance against the inevitable privations of old age.

The causes of disease, many of which we know to be the result of the filth and chaos of crowded living, contaminated water. and sewage, were merely guessed at. The overpowering smell of this waste was generally accepted as a cause of a great deal of otherwise unexplained sickness.

Even the ancient Romans built their sewers to contain the smells they considered dangerous; getting rid of sewage was a bonus. Malaria literally meant "bad air," and the name of the disease has stayed with us even though we now know its true cause.


Prevailing winds

As cities developed, particularly in Europe, the more prosperous quarters were, and still are, built in the south and west, to take advantage of the general prevailing winds blowing the smells of the city eastwards. Thus the east side of many cities had to endure the industrialization that created the prosperity of the western suburbs.

In many respects the populations of European cities of the eighteenth and nineteenth centuries reflected the problems of our own times: they were growing faster than any means could be found to sustain them. Cities were seen as sources of wealth and prosperity, so people crowded together in them, but in so doing they created the seedbeds for the diseases that were making the cities ultimately untenable.

To quote from Samuel Pepys’ Diary:
This morning one came to me to advise with me where to make me a window into my cellar in lieu of one that Sir W Batten had stopped up; and going down into my cellar to look, I put my foot into a great heap of turds, by which I find that My Turner’s house of office is full and comes into my cellar, which doth trouble me. October 20th 1660; …
People were being debilitated and killed by the toxicity of their own wastes and that of the animals used for muscle power and food. By 1810 the million inhabitants of London (by then the biggest city in the world) used 200,000 cesspits; their contents could only be cleared out manually and so were usually neglected. Waste simply accumulated because no authority took final responsibility for doing anything about it, and any laws on the matter were widely flouted.

By the 1840s, water closets were coming into general use in more affluent homes through the availability of pumped water. While these were seen as an improvement on the chamber pots of previous eras, the water closets resulted in greater quantities of water flowing into the cesspits.

This water in turn overflowed into street drains that had only been created to take rainwater into ditches and tributaries of the River Thames. Improvements in personal hygiene, allowing the upper classes to "flush and forget," had unwittingly created an even bigger danger to public health for everyone else.

Cities and towns were expanding under the pressure of industrialization, but by continuing to use a pre-industrial infrastructure of waste disposal they were being constantly hit by outbreaks of diseases that swept through huddled tenements and luxury homes alike.

Draw off points for public drinking water were often carelessly close to sewage discharges, or the water came from town wells that were contaminated by overflowing cesspits. Cholera and typhoid fever became the scourge of Victorian London.

The Thames as it ran through the city became an open sewer, as tidal flows washed effluent back and forth twice a day. It was a problem that grew throughout the early part of the nineteenth century, culminating in the unusually hot summer of 1858 when bacteria thriving in the fetid water created what became known as the "great stink."

Even the business of government itself was overcome, and plans were made to evacuate parliament to Oxford or St Albans, such was the overpowering stench of the river. Even curtains soaked in chloride of lime could not counteract the smell of raw sewage coming up from the Thames outside, but at least it focused minds and money on the problem.

Numerous proposals were made to deal with it, but only Joseph Bazalgette, chief engineer of the London Metropolitan Board of Works, came up with a workable solution. This was a truly stupendous undertaking that involved building 82 miles of intercepting sewers on the north and south banks of the Thames serving 450 miles of main sewers, linking to 13,000 miles of minor street drains. The completed system could deal with a daily waste output of half a million gallons of sewage.

The sewers were designed to take the raw effluent out to the coast to the north and south of London by gravity, terminating in giant pumping stations driven by Cornish beam engines each needing 5,000 tons of coal a year to keep them running. They lifted the sewage into giant reservoirs that discharged it out to sea on ebb tides. No attempt was made to treat the sewage, merely to get rid of it.

To build those sewers required 315 million bricks, and almost a million tons of mortar and cement. You can’t make bricks and mortar without heat, and lots of it. The only source of heat on that scale was coal, which could only be got in quantity by deep mining. With the heat energy from coal, Victorian engineers could manufacture top quality bricks by the million in enormous new kilns, rather than on the relatively small scale previously allowed by using wood as a heat source.

London embankment sewer brickwork under construction. Image from End of More.

A marvel of Victorian engineering

The entire scheme was completed between 1856 and 1870 and was a marvel of Victorian engineering, but it was only made feasible by fossil fuel energy. Coal from deep mines had only become widely available in the late 1700s, when the invention of the viable steam engine allowed miners to pump out flood water from deep shafts (the same type of steam engines that pumped the sewage to the sea).

Bazalgette’s enterprise was the biggest undertaking of civil works in the world at that time, and from firing the bricks to discharging waste into the open sea it depended entirely on the availability of cheap energy from coal. Even the delivery of the bricks and materials into the heart of the city could only have been done by the recently constructed steam powered railways.

The sewer system is out of sight and largely out of mind but remains a stark example of how we need continual energy inputs at the most basic level to sustain our health. The same sewers still keep London healthy today, and they discharge a hundred times the volume anticipated by Bazalgette’s original design.

It was ironic that burning cheap coal would save thousands of lives in the capital city by providing the means to build its sewers, while simultaneously causing thousands of deaths over the following century by poisoning its air until the introduction of the clean air act in 1956.

Every developed town and city across the world now safeguards the health of its citizens in the same way, by pumping away wastes to a safe distance before treatment. But to do it there must be constant availability of hydrocarbon energy. Electricity will enable you to pump water and sewage but it cannot provide all the infrastructure needed to build or maintain a fresh water or waste treatment plant; for that you need oil, coal, and gas.

Modern domestic plumbing systems are now made largely of plastic, which is manufactured exclusively from oil feedstock, while concrete main sewer pipes are produced using processes that are equally energy intensive. The safe discharge of human waste and the input of fresh water have been critical to health and prosperity across the developed world, yet we continue to delude ourselves that "downsizing" will somehow allow us to carry on with our current lifestyle with perhaps only minor inconveniences.

But we are even more deluded when it comes to the medical profession and all of the advanced treatments and technologies it can provide to keep us in good health for ever longer lifespans and make our lives as pain-free as possible. We have a blind faith that we can continue to benefit from a highly complex, energy-intensive healthcare system, irrespective of what happens to our energy supplies.

We read of the conditions endured by our not-so-distant forebears, and recoil in horror at the prevalence of the dirt and diseases they had to accept as part of their lives. We should perhaps stop to consider that they did not have the means to make it otherwise. In the absence of any real medical help, people who could afford them carried a pomander, a small container of scented herbs held to the nose as some kind of protection against disease and the worst of the city odours.

We think of ourselves as somehow different, but our modern health system will survive only as long as the modern day pomander of our hydrocarbon shield is there to protect it.

The last century saw massive advances in healthcare, driven by both fossil fuel and world war. The new technology and energy sources available at the start of the First World War allowed killing on an industrial scale but it also drove innovation and industrialization of medical care. The war saw the development of the triage system of prioritizing treatment for the wounded, and new means of transporting patients away from the dangers of the battlefield quickly.

In 1914 Marie Curie adapted her X-ray equipment into mobile units, specifically designed to be used in battlefield conditions. At the same time, disease was being contained with the help of mobile laboratories, tetanus antitoxin, and vaccination against typhoid. All this was no defence against the virus of the so called Spanish flu, which broke out and spread among troops and civilians alike, killing more people than the previous four years of conflict in a pandemic that ran from 1918 till 1920.

The war had killed 37 million people, and estimates put the total number of fatalities of the flu epidemic at up to another 50 million, but even those enormous numbers show as barely a blip when we look back on the inexorable rise in population in the last century.


Laying a foundation for modern medical care

The skills that had been employed to create the sewage disposal and fresh water pumping works of the nineteenth century now provided the foundations for making medical care and childbirth cleaner and safer in the twentieth.

But every innovation demanded energy input. Even the production of chlorine based bleach, which kills the bacteria of tetanus, cholera, typhus, carbuncle, hepatitis, enterovirus, streptococcus, and staphylococcus, and which we now take for granted, would not have been be possible without the industrial backup to manufacture and distribute it.

Incorrectly handled, chlorine will kill almost anything, including us. Progress in healthcare might have appeared slow to those involved, but in historical terms it began to move rapidly. Fossil fuel energy provided a cleaner environment for humanity to breed, and we began to make up the numbers lost between 1914 and 1920.

While human ingenuity was critical to such rapid progress, none of it would have been possible without the driving force of oil, coal, and gas. Our collective health today still hangs by that thread of hydrocarbon.

As the industrial power of nations forced technology ahead at an ever increasing pace after World War One, the underlying energy driving our factory production systems increased general prosperity, and that in turn financed research into unknown areas of disease.

Alexander Fleming, professor of bacteriology at St Mary’s Hospital in London first identified Penicillium mould in a petri dish in his laboratory in 1928, and began to recognize its potential for preventing post-surgical wound infections. But its full potential was not brought into play until World War Two, just over a decade later.

The drug had been created on the laboratory bench, but it needed the power of energy-driven industry to make it available in quantity. Constraints in Britain’s wartime manufacturing capacity meant that production had to be carried out in the U.S., and even there it proved difficult to refine the process to produce penicillin on an industrial scale.

John L Smith, who was to become president and chairman of Pfizer and who worked on the deep-tank fermentation process that provided a successful solution to large scale production, said of penicillin:
The mold is as temperamental as an opera singer, the yields are low, the isolation is difficult, the extraction is murder, the purification invites disaster, and the assay is unsatisfactory.
Even with the power of American industry behind it, penicillin only became available for limited use on war wounds by 1944/5, and was not made available for general use until after the war.

For little more than a century developments in safe drinking water supply, sanitation, and medical science have allowed us progressively to tackle many once-fatal diseases and illnesses. We minimized the risk of infection and created vaccines, cures, or life-prolonging treatments for everything from measles to cancers.

Western affluence and medical technologies support lives that would not otherwise be viable, for those who are born prematurely or who suffer serious injury, disability or illness. Medical treatment now incorporates preventative measures to extend lives and keep people in "perfect" health for as long as possible. As a result, average life expectancy across the global population has grown from just under 50 years in the 1950s to 67 years today.

So-called "miracle" drugs gave man a sense of omnipotence that tipped into hubris when, in 1969, U.S. Surgeon General William Stewart, was reported to have said it was time to “close the book on infectious disease.”


Fighting a losing battle

But we have not closed that book, nor are we likely to. Sir Alexander Fleming forecast that bacteria killed by his new wonder drug would eventually mutate a resistance to it. Within decades the effectiveness of antibiotics in tackling staphylococcus aureus bacteria was diminishing and the methicilin-resistant staphylococcus aureus, or MRSA "superbug," was taking hold.

It is easy to forget that before the development of the antibiotic the medical profession could provide no effective cure for infections such as pneumonia, and a slight scratch from a rose thorn bush could be enough to cause death from blood poisoning.

We are fighting a losing battle against nature; bacteria will always win the war of numbers. No matter what medication we add to our arsenal, bacteria will always mutate to resist it. Since the emergence of MRSA, hospitals have had to deal with constantly mutating new strains, each one more virulent than the last, testing our ingenuity in dealing with them, and killing patients we thought could be protected from such infection.

In some regions of the world the malaria parasite is becoming resistant to the anti-malarial drug artemisinin, while drug-resistant tuberculosis has been reported in 77 countries, according to research by the U.S. Centers for Disease Control and Prevention.

In our arrogance we have failed to take account of nature’s resilience, and have also neglected to consider human nature and our instinct to put self-interest above the common good, even if contagion is spread in the process. The behavior of the human race is less easily controlled than bacteria in a petri dish.

In less developed parts of the world, notably Africa, HIV/Aids and other infectious diseases continue to claim nearly 10 million lives a year. Global political directives and programmes to prevent and tackle disease are commonly falling short of their objectives for a variety of reasons, including localised corruption, lack of financial support from the wealthy West and misinformation propagated through local superstition or by religious groups.


Tending to the rich

In spite of the good intentions of global leaders, there continues to be a huge disparity between the health risks and care of rich and poor within cities, nations,and regions of the world. The U.S. has more than a third of the world’s health workers, tending the diseases of the affluent: heart disease, stroke, and cancer.

Many of the consuming world’s ills are being caused by people’s excesses, eating too much of the wrong foods, drinking too much alcohol, smoking, or sunbathing. A billion of the world’s people are overweight, a figure that is balanced in the cruelest of ironies by the billion who cannot find enough to eat.

At the same time, the poor of the world often lack access to medical facilities, doctors, and drugs, and also to the basics of safe drinking water, sanitation, and waste disposal. It is estimated that almost half of the developing world’s population live without sanitation, and as increasing numbers of people are living in overcrowded, urban conditions the potential for transmission of infectious disease grows.

The consuming nations had the geological good fortune to be sitting on resources -- coal and iron -- that could be used to build water and waste disposal systems, but others have been far less fortunate. We now see megacities like Lagos and others with populations of 10 million or more with little or no water or sewage infrastructure, in tropical heat.

For them, the energy to build a modern health infrastructure is a dream that will never materialize: there is too little energy left and it has all become too expensive.

It is also becoming too expensive for the consuming countries of the west, as can be seen in the government cuts in health service budgets now taking place. We have developed extremely successful and innovative medical technologies, a pill for every ill and a physical infrastructure of surgeries, clinics and hospital buildings: all are highly sophisticated luxuries that we can no longer afford and consume vast amounts of energy.

The U.S. Environmental Protection Agency estimates that hospitals use twice as much energy per square foot as a comparable office block, to keep the lights, heating, ventilation, and air conditioning on 24/7 and run an array of equipment from refrigerators to MRI scanners.

But don’t take our word for it. Dan Bednarz, PhD, health-care consultant and editor of the Health after Oil blog, presented his view of the future at a nurses’ conference in Pennsylvania, USA:
Fossil fuel costs will continue to rise and eventually the healthcare system will be forced to downsize -- just as the baby boomers and (possibly) climate change effects inundate the system.
Without energy input our hospitals and medical systems cannot be maintained at their present levels, and concepts of health and care become very different.

We are already seeing a resurgence of alternative medical therapies, often using herbs similar to those in the historic pomander. This foreshadows what will happen in your post-industrial future as well-fed health and wellbeing give way to weakness and disease, accentuated by poor nutrition, and the energy-driven skills of modern medicine are no longer readily available.

A doctor might have a knowledge of what ails you, but that might be almost his only advantage over his medieval counterpart. Knowing that you need an antibiotic to stop a raging infection will be of little use if there’s no means of getting hold of it.

Just contemplate the "innovative" methods of the surgeons in northern Italy’s medieval universities in the 1400s:
"They washed the wound with wine, scrupulously removing every foreign particle; then they brought the edges together, not allowing wine nor anything to remain within -- dry adhesive surfaces were their desire. Nature, they said, produce the means of union in a viscous exudation, or natural as it was afterwards called by Paracelsus, Pare, and Wurtz. in older wounds they did their best to obtain union by desiccation, and refreshing of the edges. Upon the outer surface they laid only lint steeped in wine.” -- Sir Clifford Allbutt, regius professor of physic, University of Cambridge
The modern health system has replaced our need to take responsibility for our own bodies. It cannot give us immortality, but it has given us the next best thing: long, safe, and comfortable lives. We built our good health on hydrocarbon energy, but in the future a wealth of factors will make it progressively more difficult for us to exert control over disease as that energy source slips from our grasp.

Disease will become more prevalent, not only in localized outbreaks, but at epidemic and even pandemic levels. Your healthcare system cannot downsize, it’s either there or it isn’t.

[Norman Pagett is a UK-based professional technical writer and communicator, working in the engineering, building, transport, environmental, health, and food industries. Josephine Smit is a UK-based journalist specializing in architecture and environmental issues and policy who has freelanced for British newspapers including the Sunday Times.Together they edit and write The End of More.]

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17 March 2013

Lamar W. Hankins : CPR and End-of-Life Decisions

Art from PBS NewsHour.
CPR and end-of-life decisions
Since the story of the 87-year old woman first appeared, more information has come to light. She was aware of and had agreed to the policy of the center where she lived -- that CPR would not be performed in the event she collapsed.
By Lamar W. Hankins / The Rag Blog / March 17, 2013

Cardiopulmonary resuscitation -- CPR -- is as widely misunderstood as it is widely known, especially when it involves the terminally ill and those who are in poor physical condition.

The recent reports of the death of an 87-year-old woman who was living in a facility in Bakersfield, California, have troubled many people. The woman collapsed in the dining room of the facility, apparently as a result of cardiac arrest. Staff called 911, but in keeping with the facility’s policy as they understood it, refused to give CPR to the woman despite pleas from the 911 operator to do so. Emergency medical personnel declared the woman dead after they arrived at the facility a short while later.

Many nurses, at least one nurses' association, and many lay people have viewed this refusal to administer CPR as criminal, or at least unethical. Others have termed the failure immoral and unconscionable. But the outrage may be misplaced and unwarranted.

Indeed, even as someone with 20 years experience studying, lecturing, and writing about end-of-life matters, my first emotional reaction was sorrow at the death of the woman. I knew, however, that it was important to get all the facts before making any judgments about what happened. The initial reporting was sketchy at best. Now that more information has filtered out, we can draw more informed conclusions. But first, it is useful to have basic information about CPR.

The Family Caregiver Alliance in California provides information, educates, does research, and advocates for those who provide care for the elderly and those nearing the end of life because of illness or disease. The information it provides about CPR appears to be in the mainstream of medical knowledge about the procedure. While CPR can have life-saving benefits for people in general good health who have certain kinds of heart attacks and accidents, especially in a hospital, it may be of little benefit to others.

The Alliance describes CPR far differently than it is usually portrayed on television:
Pushing the center of the chest down about one and one-half inches, 100 times a minute for several minutes, causes pain, and may even break ribs, damage the liver, or create other significant problems. CPR produces a barely adequate heartbeat, and doing it more gently is not sufficient to circulate enough blood. Electric shocks and a tube in the throat are also harsh treatments, but may be essential to resuscitate someone.
Other organs that can be damaged by CPR include the spleen and lungs. If CPR is only partially successful, so that normal breathing is not restored, it may lead to the need for a ventilator for days, weeks, months, or much longer. When a person’s breathing or heartbeat fails for just a few minutes, the brain is deprived of oxygen and begins to fail, and permanent brain damage can result.

Studies about CPR have shown that only about 15% of patients in a hospital who receive CPR survive and are later discharged. Fewer than 5% of elderly patients with serious illnesses who have CPR will leave the hospital alive. The most likely beneficiaries of CPR are those with an abnormal heart rhythm, people who have respiratory arrest only, and people who are generally healthy.

Those with the least chance of survival from CPR are people with one or two medical problems, the frail and elderly, people who are dependent on others for care, and people who have long-term or terminal illnesses.

Some people, because of their physical condition or a permanent decline in the quality of life, decide not to have CPR if their heart fails. All Americans have a constitutional right to make this decision. The U.S. Supreme Court, in the 1990 Nancy Cruzan case, recognized a constitutional right of an individual to make decisions about life-sustaining medical treatment and held that that right did not end if the person became mentally incapacitated.

Now, through advance directives, all competent adults can assure that their wishes are respected. And our constitutional right to decide the kind of healthcare treatment we want, before we need it, allows us to appoint a surrogate to make healthcare decisions for us if we become incapable of making those decisions for ourselves.

While the Cruzan case clarified the law on end-of-life care, it also illustrates the tragedy of not having end-of-life medical care plans, no matter how young we are. Cruzan was only 25 when she was seriously injured in a car accident and drifted into a persistent vegetative state. Most people would not want to spend years in such a condition or suffer from other conditions that permanently make life impossible to enjoy and participate in.

But whatever your feelings about these matters, advance directives give all mentally competent adults a way to make their views known about these medical issues before they confront a serious medical problem. Each individual who uses advance directives wisely controls such decisions.

Most states now provide statutory forms for both Directives to Physicians and Medical Powers of Attorney, but these forms may be expanded and revised to reflect a person’s precise wishes about medical care in the future. People may draft their own directives if the state directive is inadequate to express their wishes.

In Perspectives on Death and Dying, authors Gere Fulton and Eileen Metress provide the history of such directives and explain that advance directives help ensure that a person’s “wishes concerning treatment options will be respected,” and “they protect... family members, health care professionals, and others from the stress and potential conflict of making critical decisions without sufficient information concerning [a person’s] wishes if [the person is] incompetent.”

Further, the federal Patient Self-Determination Act, signed into law in 1990 by President George H. W. Bush, requires all healthcare facilities and programs serving Medicare and Medicaid patients to establish written policies and procedures to determine their patients’ wishes about end-of-life care and to make sure these wishes are honored. Such facilities and programs must also implement ways to educate their staff and community about advance directives. As a result, most hospital patients are asked if they have advance directives when they enter the hospital.

To avoid unwanted medical services or assure that the ones you want are provided, everyone should discuss advance medical planning with physicians, family, and caregivers. Such discussions may be organized around three legal documents, identified in most states as advance directives. One form (called a “Directive to Physicians, Family and Surrogates” in Texas) allows mentally competent persons to decide what sort of medical interventions are appropriate for them if they are faced with certain medical conditions. This form is sometimes termed a Living Will.

A second form provides for the appointment of a medical agent or surrogate to make medical decisions for a person if that person should become unable to make such decisions. This form is called a “Medical Power of Attorney” in Texas, and is termed a “Durable Power of Attorney for Health Care,” or something similar, in other states.

The third form, which must be ordered by a physician in Texas at the request of a patient or medical agent is the “Do Not Resuscitate” (DNR) order. This order can be used in a hospital setting or out of the hospital, in which case it is termed an out-of-hospital do not resuscitate order (OOHDNR). This order provides that if a person’s heart stops beating, no efforts should be made to revive the person. This decision is made by the patient, or the person’s agent if they are cognitively incapacitated, with the doctor’s agreement.

A few states have more comprehensive documents called “Physician Orders for Life-Sustaining Treatment” (POLST) or “Medical Orders for Life-Sustaining Treatment” (MOLST). These are not available in Texas.

Since the story of the 87-year old woman first appeared, more information has come to light. The woman was not in an assisted living center or nursing home, but in an independent living center. It appears now that she had a stroke, not cardiac arrest. And she was aware of and had agreed to the policy of the center where she lived -- that CPR would not be performed in the event she collapsed. The staff followed the agreed procedure and called 911 immediately.

The elderly woman’s family said she was aware that the facility did not offer trained medical staff, yet opted to live there anyway:
It was our beloved mother and grandmother’s wish to die naturally and without any kind of life-prolonging intervention. We understand that the 911 tape of this event has caused concern, but our family knows that mom had full knowledge of the limitations of Glenwood Gardens and is at peace.
Dr. Jennifer Black, a family and palliative medicine physician in Bakersfield, summarized the dilemma we all face:
[W]e must accept that death is an inevitable life event, not a medical problem that can be "solved" with medicine, surgery or CPR. Next, we must learn the facts about CPR, and discuss these with our patients/doctors/loved ones. One of these facts: foregoing CPR is frequently not a matter of "letting" someone die, but simply of minimizing the pain and suffering associated with an inevitable death. Finally, we must ensure that our patient's -- and our own -- end-of-life wishes are known and clearly documented in an advance directive... By doing these things, we can best assure wishes are respected, harm minimized and dignity preserved.
A widespread discussion of this case may lead more people to have discussions with their physicians, families, and care-givers about their medical choices at the end of life. If so, all the alarm, name-calling, and misinformation now being sorted out may help move more people to take charge of their end-of-life planning.

[Lamar W. Hankins, a former San Marcos, Texas, city attorney, is also a columnist for the San Marcos Mercury. This article © Freethought San Marcos, Lamar W. Hankins. Read more articles by Lamar W. Hankins on The Rag Blog.]

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20 November 2012

Lamar W. Hankins : 'Death with Dignity' Defeated

Image from WNYT.com.

'Death with Dignity' defeated:
Freedom denied by Massachusetts voters
If I decide that it is time for my life to come to an end for reasons important to me, that should be my decision.
By Lamar W. Hankins / The Rag Blog / November 21, 2012
"The greatest human freedom is to live, and die, according to one's own desires and beliefs. From advance directives to physician-assisted dying, death with dignity is a movement to provide options for the dying to control their own end-of-life care." -- Statement from the Death with Dignity National Center
Since the founding of this country, the ideal of individualism has always been balanced with the ideal of community. Conflicts between the two concepts usually involve taking one person’s property or altering property rights for the betterment of the whole community, or preventing individual behaviors that might be harmful to the community as a whole (such as shooting a gun in the city, or failing to report communicable diseases to health authorities, to enable treatment or quarantine of an individual).

But individualism went down to defeat in a vote on November 6 in Massachusetts for reasons unrelated to the best interests of the community. That state was voting on a so-called Death with Dignity initiative that would have made Massachusetts the third state to officially adopt a law that recognizes the right of terminally-ill persons to end their own lives with self-administered lethal drugs prescribed by their physicians to end their suffering.

The prescription would be made available only after many safeguards are implemented. Oregon and Washington have similar laws and Montana’s Supreme Court has recognized such a right in that state’s constitution.

The Massachusetts proposal was modeled after the 1997 Oregon law that was the first Death with Dignity Act (DWDA) adopted in the nation. This choice of death with dignity appears not to have been abused according to the reports made each year by the Oregon Public Health Division. Since the law took effect in 1998 and through 2011, 596 Oregonians have ended their lives using the law. During this same time, 339 others obtained the prescription drugs, but did not use them.

The 2011 Public Health report noted that the three most frequently mentioned reasons for using the law were “decreasing ability to participate in activities that made life enjoyable (90.1%), loss of autonomy (88.7%), and loss of dignity (74.6%).” These appear to be the same concerns expressed by others since the law took effect. Over 82% of patients who used the DWDA in 2011 had some form of terminal cancer, a figure that has been consistent over the years since the law took effect.

The Public Health report reveals that 94.1% of patients who used the DWDA last year died at home; 96.7% were enrolled in hospice care either at the time the DWDA prescription was written or at the time of death; and 96.7% had some form of health care insurance. These data have been fairly consistent throughout the years since the DWDA was enacted in Oregon.

Undoubtedly, Oregon’s health care system, especially its hospice care, has been a primary reason that the law has not been used by more people. A notable benefit of the law has been an improvement in Oregon’s end-of-life care, especially pain control.

But a similar law proposed for Massachusetts was narrowly defeated -- 51% to 49%. Opposition came mainly from the Catholic church and a group of disability activists associated with Not Dead Yet. My personal involvement with promoting the rights of the disabled as an attorney for the last 35 years and my experience with caring for disabled parents for several years has created a great deal of dissonance for me as I have listened to the arguments made by disability rights activists against Death with Dignity proposals.

In the mid-90s, I became involved personally with the Death with Dignity movement, first by helping to organize a chapter of Hemlock in the Austin area, then in support of Compassion & Choices (the successor to Hemlock through a merger), and now with the Final Exit Network.

I have favored death with dignity laws because of my support for the personal autonomy and the individual rights I believe all people should have to make decisions about their lives. I have not seen this issue as creating conflict between the ideals of individualism and community. For me, the decision to end one’s life to end one's suffering is purely an individual decision. But that’s not how other disability rights advocates see it.

Many of the arguments made by Not Dead Yet and others in Massachusetts focused on how Oregon carries out its DWDA, according to Melissa Barber, an Electronics Commination Specialist with the Death with Dignity National Center. They argued that doctors can't accurately predict when a patient will die, that there isn't a requirement for people to tell their families they've requested the medication, that there's no required psychological evaluation, and that patients who request the medication might not talk to hospice and palliative care professionals.

But all of these arguments are false or misleading. For example, in Oregon two doctors must find that the person requesting a lethal prescription has six months or less to live. It should be obvious that no one can accurately predict exactly when a person with a terminal illness will die, but physicians apply their clinical experience and their knowledge of the course of an illness to determine whether a person has six months or less to live.

It matters little whether I have six days or six years to live. If I decide that it is time for my life to come to an end for reasons important to me, that should be my decision. The accuracy of a doctor’s informed opinion about my life expectancy is beside the point.

Although patients in Oregon are encouraged to talk with their families and loved ones about their decision to request lethal medication, it is the patient’s choice whom to talk to about this decision. If I need a “feeding tube” to get adequate nutrition, whether I get it is my choice. I may or may not talk with family members about the decision, though I am sure I will be encouraged to talk with family members about the matter.

This is true of all medical decisions made by mentally competent adults. A decision about asking for lethal medication should be no different.

The argument about “no required psychological evaluation” is likewise specious. In Oregon, two independent physicians evaluate the patient for signs of depression. If they detect signs, they refer the patient to a mental health specialist.

Although many people believe that anyone who chooses to stop their suffering before what we call a natural death is mentally ill, there are no data to support such a position. Having my life controlled by another person’s fear or belief takes away my autonomy to decide what is best for me.

Lack of access to adequate health services is unlikely to be a reason for choosing to end one’s life shortly before it would end as a result of some terminal illness. The overwhelming number of Oregonians who choose to use the DWDA are in hospice care and have health insurance -- almost 97% of them. And about 40% of Oregonians who obtain lethal medications do not use them, which indicates that the system is not pushing people to hurry up and die, another argument frequently used to oppose death with dignity laws.

Perhaps the Not Dead Yet activists are concerned about a variation of the slippery slope argument, applied to those with permanent disabilities. Their position is that some people fear disability more than death. They assert that all people with a terminal illness will become disabled at some point during their illness. Because some people can’t accept this disability, they want to die rather than live through the disability to a “natural” end.

Such a desire is an indirect threat to people who choose to make the best of their disability and live with it. They fear that disability will come to be seen as a condition that should not be tolerated, leading to the killing of disabled people against their will.

In effect, they are saying that if I have a terminal illness, I can’t decide to end my life at a time of my choosing because it is not the decision they would make, and it might lead to euthanasia of the disabled.

This position is astounding to me. I would never want to decide for others a course of medical treatment or assistance when they are capable of making that decision for themselves. These activists have no right to make that decision for me. But they choose to deny me the rights they hold precious for themselves -- to decide how to live and die on my own terms.

 I’m Not Dead Yet, either, but I’ll not try to control how others live or die.

[Lamar W. Hankins, a former San Marcos, Texas, city attorney, is also a columnist for the San Marcos Mercury. This article © Freethought San Marcos, Lamar W. Hankins. Read more articles by Lamar W. Hankins on The Rag Blog.]

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03 July 2012

Ted McLaughlin : Are We Moving Towards Single-Payer?

Photo by Glyn Lowe Photoworks / Flickr. Image from OtherWords.

The pressures moving the U.S. closer
to a single-payer health care system
There will be a huge pressure to reform Medicaid -- and the only way to reform it adequately is to make it a federally-administered program.
By Ted McLaughlin / The Rag Blog / July 3, 2012

It looks like the Affordable Care Act (Obamacare) is here to stay. After last week's Supreme Court decision, the only way it can be overturned now is for the Republicans to win the White House and both houses of Congress in the coming election (which is very unlikely) -- and even then, they might find public pressure would prevent its repeal.

Right now, a slight majority of people don't like Obamacare. Some have projected this to mean that a majority of Americans would like to see it repealed. That is just not true. One recent poll showed that 79% of Americans like most of the reforms and don't want it all repealed.

The only part they're not crazy about is the individual mandate. But as the program kicks in fully in the next couple of years, people will begin to realize that the individual mandate only applies to between 2% and 5% of the population -- and the program will become more and more popular.

Another fact commonly overlooked is that among those who are against Obamacare, about 22% don't want it repealed but made stronger. These people would like to see a public option at a minimum (and really want a single-payer system like those in other developed countries). When the program was first passed, I was among those opposing it because it didn't go far enough. I was afraid that all it really did was to delay the United States from going to a single-payer health insurance system.

But after a lot of thinking about it, and a few facts coming to light, I'm starting to change my opinion. I now believe that Obamacare might actually hasten America's progress toward a single-payer system, instead of delaying it. That's because the program is responsible for creating (or increasing) three pressures on the health care system as a whole to move toward a single-payer system. These three pressures are:
  1. Forcing private insurance companies to pay a bigger percentage of their premiums for real medical care.
  2. The continuing decline in employer-based insurance coverage.
  3. The refusal of many states to increase Medicaid coverage for the poor.
Let me take these in order. First, in the past the insurance companies have not been required to spend the money they get for real medical care. While government-run Medicare has an overhead expense of 3% to 4%, many of the private insurance companies were putting 30% to 40% of their premiums toward "overhead."

And the more they put into this area (and the less into medical costs for consumers), the more profit they had. This was a primary reason for the record-breaking profits those companies were showing.

Obamacare ended that. A private insurance company must now put at least 80% of its premium income toward actual medical costs of its consumers (and the giant companies must spend at least 85% on medical costs).

The companies tried to get around this by declaring some administrative costs as medical costs (like the money spent paying their salesmen to sell the policies), but the government didn't go for it. They demanded medical costs be actual medical costs (rather than hidden administrative costs). And if an insurance company fails to spend the proper percentage on medical costs, then they must refund a big enough part of premiums received to get them down to the proper percentage (and the first refunds are currently being issued).

While this still allows the insurance companies to make a decent profit, it has put a serious crimp in the outrageous profits they were making (by denying claims and raising premiums). Now if they raise premiums, they must also increase the amount they spend for medical costs (or wind up refunding the raise).

In other words, the large insurance companies no longer have a license to steal -- and they don't like that. Forbes Magazine reports that some insurance companies are already getting out and searching for other, more lucrative, ways to do business -- and this movement out of insurance to other things will probably just continue to grow.

Second, is the move away from employer-based insurance for workers. This started before Obamacare was created (or the recession hit). As the chart above shows, the percentage of Americans covered by employer-based insurance fell from 69.2% in 2000 to about 58.6% in 2010 -- and the trend continues to move downward. If 2010 had the same percentage of coverage as 2000, then 28 million more people would have employer-based insurance than currently have it.

The hope of the writers of Obama's reform program was that the law would stop this decline in employer-based insurance coverage (through tax breaks for businesses, creation of health insurance exchanges, and a penalty charged for companies that don't provide insurance). I think that's mostly wishful thinking. Any business with less than 50 workers will be exempt, which means there is no incentive for small businesses to provide insurance. And as medical costs (and therefore insurance premiums) rise, many other businesses may decide it is cheaper to pay the penalty than to provide insurance coverage.

And those companies choosing the penalty over insurance coverage will just be a short step away from approving of single-payer insurance (which would most likely be funded by employee/employer contributions just like Social Security), as they realize it would be cheaper for them than providing their employees with ever-rising private insurance.

Third, and perhaps the biggest pressure for single-payer insurance, is the Republican state governments refusing to institute the Medicaid reforms called for in the program. The red states in the map above (from ThinkProgress ) are those with Republican leadership. The 10 states in dark red have already said they will not adopt the Medicaid reforms to cover most of the poor (even though the federal government would pay all of the cost for three years and then pay 90% of the cost). And it is extremely likely that the lighter red states will soon follow suit.

That means many millions of Americans who thought they would be getting insurance coverage because of the reforms, will be denied it because the Republicans will just continue the current inadequate Medicaid programs. They will do this because they don't consider medical care to be a right, but only a privilege available to people who can afford it.

For them, their ideology is more important than the lives and health of many millions of their fellow citizens. And they can get away with this because the Supreme Court killed the provision that would have forced the states to reform Medicaid.

Now one of the primary reasons Obamacare was passed was that there are 50 million people in this country without any kind of medical insurance. Some of these will now be able to get private insurance because of the health insurance exchanges and government subsidies. But a large part of this 50 million (the poor and the working-poor) were meant to be covered through Medicaid.

If this doesn't happen, there will be a huge pressure to reform Medicaid -- and the only way to reform it adequately is to make it a federally-administered program (like Medicare). And the easiest way to do that is to let those making less than a certain salary qualify for Medicare (and do away with Medicaid).

This huge swell in Medicare, combined with decreasing employer-based insurance and insurance companies leaving the business, will bring great pressure to go to a government-run single-payer insurance system.

The experience of other countries has shown us that the money spent on medical care overall will then decrease (since we spend much more per capita than any single-payer country). It will also decrease premium costs for both individuals and businesses (since high overhead and huge profits will be eliminated).

The way I see it, Obamacare did not delay going to a single-payer system. In fact, it has probably created (or increased) the pressures propelling us to adopt a single-payer system much sooner. It has to happen. There is no other real solution to our current broken health care system. Obamacare made some improvements, but it didn't fix the broken system. But maybe it is pushing us much closer to the real solution.

[Ted McLaughlin, a regular contributor to The Rag Blog, also posts at jobsanger. Read more articles by Ted McLaughlin on The Rag Blog.]

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22 September 2011

Sarito Carol Neiman : The Anti-Angels of Health Care

Cartoon from The New Yorker.

Shredding the envelope:
Healthcare on the ground - Part III:
The anti-angel forces
By Sarito Carol Neiman / The Rag Blog / September 22, 2011

[Shredding the Envelope ("Ruminations on news, taboos, and space beyond time") is Sarito Carol Neiman's (occasionally) regular column for The Rag Blog. This is the third in a series. Read Part I here.]

The computer workstation in my dad’s room, according to the sales pitches of companies who sell them, was designed with the best of intentions to improve both the efficiency and quality of care in hospitals.

It would allow Dad’s caretakers to enter the latest information about his care (vital signs taken, medications given, observations observed) and to retrieve any information about him and his condition they might need -- on the spot, without having to go and fetch it from (or take it to) its central location at the nursing station down the hall.

It would allow them (in theory) to spend a little extra time in the rooms with the patients, as they entered or retrieved their information -- assuming they could safely mix “quality time” with the patient and the entry/retrieval of complex data at the same time. (An assumption of multitasking ability whose superhuman dimensions the sales pitches overlook.)

In theory, this computer workstation could be part of a vast network of computers, consolidating input gathered from every healthcare professional who had ever seen my dad for any reason. It could offer a more comprehensive picture of Dad’s medical history and current condition than any single human could possibly manage.

Imagine the possibilities... if such a network had been in place from the beginning of this years-long saga, and if all the professionals involved in Dad’s care had been doing more than just their jobs, he very likely would never have ended up in the hospital in the first place.

Those are some pretty hefty “ifs.” And as good a starting point as any to take a look at the “anti-angel forces” at work in the U.S. healthcare system.

Let’s take care of the big stuff first. Let’s assume that our “inalienable rights” to life, liberty, and the pursuit of happiness include the right to healthcare -- not as a consequence of having the money to pay the going market rates for it, but as a consequence of being human. Let’s assume, in other words, that there is no need for private insurance companies, hence no fear that a person’s medical history will be used to deny coverage, or to charge an arm and a leg for it.

Let’s further assume that we can agree that being a healthcare provider is a very special calling indeed, and that those who take up the calling should be honored and rewarded for making that choice, rather than being thrust into indentured servitude by a mountain of postgraduate debt, forced to pay for that debt by performing procedures rather than spending time with and understanding their patients, and being stalked by “ambulance-chasing” lawyers whose primary motive is to make a buck on their mistakes and on the suffering of the victims of those mistakes.

(More about the whole “tort reform”/malpractice thing at another time.)

So now we’ve taken care of the big stuff, we get to the sticky, non-systemic, human bits.

Of course, a universal “inalienable right” to healthcare would need us all -- hospital administrators, doctors, nurses, aides, and patients, all of us -- to behave sensibly, like grown-ups.

We would understand that sometimes things get broken and can’t be fixed, and not every mistake is the result of malice or incompetence. We would know the futility, even harmfulness, of squandering scarce resources on experimental fixes that are likely to fail, or only extend suffering rather than heal. We would understand that death is a natural and inevitable part of the continuum of life.

We would do our very best to keep ourselves healthy and, when those efforts fail, do our best to comprehend the reasons and take responsibility for whatever part we might play in getting better. We would know when to push on against all odds, and when to call it quits. We would celebrate every small victory, and we would know when to allow ourselves to grieve.

We would, in other words, be able to see every health crisis for the opportunity it brings -- to take stock of our priorities, to allow ourselves to love and be loved, to heal the old and untended wounds that so often seem to surface at these times.

To help us get from here to there, though (it’s unlikely we’re just going to wake up and find ourselves there), we’d have to start with a clear-eyed look at what we’ve got now.

The computer workstation in my dad’s room, attached conveniently out of the way on the wall, was a neutral presence, at first glance. And, as advertised, it was undoubtedly a time-saving, mistake-reducing tool. It wasn’t until it broke down for a few days that I began to understand how it was also being used by “anti-angel” forces.

As long as this tool was functioning, nurses came and went with their tasks-to-perform and medications-to-give on what was apparently a rigid, inflexible schedule. It didn’t matter whether Dad was eating his breakfast, having a phone conversation with a loved one, or peacefully asleep -- the pills had to be given, the BP cuff strapped on, the thermometer inserted. Toward the end of his stay, when he was better able to move around, he discovered that the only way to assert his right to uninterrupted peace and quiet was to go and sit on the toilet.

When the computer workstation tool stopped functioning (and I confess to an irrational fear that I might be blowing the cover of a complex angel-conspiracy) somehow it became fine to let Dad finish his breakfast, or his phone call. To come back a few minutes later to do whatever was on the nursing agenda to be done. Not a problem, said the gracious smiles and body language of the nurses carrying the pills and thermometers. I’ll come back in a little while when you’re done.

And they didn’t forget, either -- it wasn’t as though these important tasks magically disappeared from the “do-list” just for lack of computer assistance.

That’s when it occurred to me that behind the hunched shoulders and grim determination of nursing “business as usual” was a Big Brother element that the nurses were fully aware of, but the workstation sales pitches don’t mention. A function more interesting to hospital administrators and lawyers, say, than to doctors or other actual hands-on providers of Dad’s care.

It works like this: the nurse turns on the computer and scans in her badge (nurse presence accounted for) at a certain time (schedule adhered to and trackable by the minute) followed by scans of medication labels, or keystroke entries of vital signs (asses covered). Checked off the list, tidy and impersonal, easily scanned by those whose interest is that no unpredictable breezes of individual human needs or circumstance should interfere with the hum of the well-oiled (and litigation-protected) hospital machine.

The doctors didn’t have to use this workstation, however. They could, if they wanted to look something up... but they didn’t have to, nor did they have to tell it whatever it was they did while they were there.

My sense was that the whole workstation set-up not only reflects but also reinforces the subordinate and purely functional role of nurses in the system as it is. In most hospitals -- with a few notable exceptions, I have heard -- nurses are told what to do (“doctor’s orders”), expected to pass along requests or problems from the patients, and rarely if ever encouraged (or even allowed) to express an opinion, make a recommendation, or question a decision by the doctor that their best intelligence tells them might not be a good idea. A bit silly, to put a better face on it than it deserves -- given that the nurses spend far more time with patients on an hour-by-hour basis than any doctor can possibly afford to spend.

It also, of course, reflects the fact that as the system is set up now, the actions of doctors and the reasons behind those actions are largely protected from public view, and are not required to be shared with other members of the team unless the doctor chooses to share them.

Doctors.

When I first met Dad’s surgeon, I didn’t like him much. Not because I thought he was incompetent -- on the contrary, I was satisfied that he was the best available anywhere near Dad’s home. My dislike was more in the realm of “bedside manner.”

I can’t really blame him for the fact that at our first meeting he was uninterested in knowing who I was or why I was there, to the point of being dismissive. He had, after all, already met and spoken with several members of the family along the way, and at that point I must have seemed like yet another potential burden of irrelevant and time-consuming human interaction that he would just as soon avoid.

Plus, he’s a surgeon after all, not a GP -- the skill sets required to do an excellent job in those two realms are different. Even if the skills to do more than the job might overlap or even be the same.

Over subsequent meetings our relationship was rocky, with additions of ego-prickliness alongside any deficits in bedside-manner skills. He didn’t like being questioned, especially in front of his entourage. This dislike, it seemed to me, carried the weight of a reflexive assumption that my questions were posed as a challenge, rather than as a sincere effort to understand.

I did my best to accommodate the lesser angels of his nature, to reassure him that I absolutely trusted his medical expertise, while still honoring my own concerns for the rocky spots in Dad’s recovery and whatever support I might be able to lend as a “person on the ground.” In the end, I didn’t want him to change, really -- I thought he could use a good “right-hand” person, more a GP type, whom he trusted and who trusted him, to take care of the squishy bits of listening patiently and explaining things to people like me, and maybe translating my concerns into a language he could better understand and relate to.

We worked it out, somehow -- the mutual respect and understanding between him and Dad was undisturbed, and when he finally came in with the happy news that Dad could leave the hospital and go on to the next stage of getting strong enough to go home, I was as fully included in the sharing of that news as was appropriate, given who was most directly affected.

I was also delighted to hear that during Dad’s recent follow-up visit, the doctor showed him “before and after” X-rays of his lung, and the transformation that had taken place. The news nicely balanced what happened that day when Dad was having such a hard time, convinced he wasn’t getting any better and grumbling about having to go downstairs for a new X-ray every morning.

When the doctor came by, I suggested maybe Dad could see a before-and-after picture, so he could look for himself how things were going. The response was a little explosion of exasperated breath, an energetic (if not physical) throwing up of the hands, and a “that’s not so easy, it’s all on computer” before turning around and (energetically) stomping out the door.

I liked it when I heard the news that the doctor had managed that “show and tell” … because I know it helped Dad, as it would have helped him on that day I suggested it in the hospital, to get a handle on whether the whole ordeal had really been worth it. Maybe, I thought, just maybe he had heard me after all. Maybe he’ll remember it the next time one of his patients is having a hard time convincing himself it’s all worth it.

We all have a lot of work to do if we are going to meet the challenges of providing thoughtful, competent, whole-person healthcare in this world.

We’ll have to figure out the best ways to weed out those who are thoughtless and incompetent and in jobs they aren’t suited for. And we’ll have to work on minimizing the harm done by our natural human tendencies to want magic pills, and to substitute a messy and mysterious wholeness with discrete and manageable, but lifeless, parts.

We’ll need to figure out how to shift our focus from avoiding the worst to striving for the best.

We’ll have to take a deep look at the role of lawyers in the healthcare system, and the hopeless, despairing greediness they so often foster in our lives. We’ll need to acknowledge that no amount of money can alleviate pain and suffering, and that often, all any of us really wants is a heartfelt apology, shared grief, and support for moving through a loss. And yes, too, sometimes, the satisfaction of knowing that an incompetent, greedy, or careless practitioner will never be able to harm anyone again.

It’s a lot of work, and it needs us all to do more than just our jobs. And at the moment, for me, it’s right up there among the top jobs on the list of those most important and meaningful.

[Sarito Carol Neiman (then just “Carol”) was a founding editor of The Rag in 1966 Austin, and later edited New Left Notes, the national newspaper of Students for a Democratic Society (SDS). With then-husband Greg Calvert, Neiman co-authored one of the seminal books of the New Left era, A Disrupted History: The New Left and the New Capitalism and later compiled and edited the contemporary Buddhist mystic Osho’s posthumous Authobiography of a Spiritually Incorrect Mystic. Neiman, also an actress and stage director, currently lives in Junction, Texas. Read more articles by Sarito Carol Neiman on The Rag Blog]The Rag Blog

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20 September 2011

Lamar W. Hankins : Republican Health Care: 'Let Him Die'

Thumbs down at Republican debate. Image from The Godless Liberal.

'Just let him die':
The Republicans and health care
The indisputable fact is that the U.S. is alone among the advanced societies in failing to assure that health care is available to all its citizens.
By Lamar W. Hankins / The Rag Blog / September 19, 2011

Now that the Republican nomination for president is in full swing, we once again return to the topic of health care, especially the role of government in assuring that all Americans have access to that life necessity.

Living adequately in a modern society requires many things -- transportation, housing, food, income, security from crime, education, water, fire protection, fuel for home needs and vehicles, and information about what is going on in our community, state, and nation.

Few people disagree with this list, but when health care is added to it, some people become uncomfortable -- some almost apoplectic.

The government at all levels helps provide everything on the list, as does the private sector. We have a mixed economy. Usually, government and the private sector cooperate in providing needed goods and services. Sometimes the government takes the lead role; sometimes it is the private sector leading. Few, if any, vital services are provided exclusively by the private sector.

I may buy natural gas from a private company, but the transmission of that natural gas to my home requires the assistance of government to assure that it is done with sufficient care that no one is put at risk. The public highways and streets are used by the gas company to provide the service. Public rights of way are used for the natural gas lines. The government inspects the company's installation and maintenance of the company's gas lines to insure that they are safe and citizens are protected. It is a cooperative endeavor that benefits all of us.

Neither the government nor the company is perfect, however. Mistakes are made by both on occasion, but the system works about as well as any human enterprise can be expected to work. When there is a failure, the causes are determined and actions are taken to correct the deficiencies in the system. If the failures are too great, changes in leadership occur in either the government, the private company, or both.

Few goods and services are provided in our society without this sort of cooperation, coordination, and connectedness between the private sector and government. In fact, I am unable to think of a single 100% private-sector activity; that is, an activity that does not use some resource of the government or the public to carry out its purpose. If you come up with one, please share it.

This system works, more or less, for all of the needs of modern life. But when we start discussing health care, people who believe strongly in self-sufficiency and rugged individualism posit the notion that health care needs must be entirely the responsibility of the individual. This happened at one of the recent Republican presidential nomination debates, as described by The Washington Post’s Eugene Robinson:
The lowest point of the evening -- and perhaps of the political season -- came when moderator Wolf Blitzer asked Ron Paul a hypothetical question about a young man who elects not to purchase health insurance. The man has a medical crisis, goes into a coma and needs expensive care. "Who pays?" Blitzer asked. "That’s what freedom is all about, taking your own risks," Paul answered. … Blitzer interrupted: "But Congressman, are you saying that society should just let him die?" There were enthusiastic shouts of "Yeah!" from the crowd.
Paul then mentioned that the churches would take care of such people. Most listeners and watchers to that debate probably missed the irony in this exchange between Paul and Blitzer. Jay Bookman, a columnist and blogger for the Atlanta Journal-Constitution, explained in 2008 what Paul has ignored and Blitzer likely did not know:
Kent Snyder, 49, served as Paul’s 2008 campaign manager but died of complications from pneumonia two weeks after Paul withdrew from the ‘08 race. … However, Snyder did not have health insurance. According to his mother, he had a pre-existing condition that made it financially impossible to buy it on his own. (Interestingly, Snyder is credited with raising $19.5 million for the Paul campaign in the fourth quarter of 2007 alone, but none of that money was apparently used to buy insurance for campaign staffers.)

Because we treat health care as a de facto right in this country, Snyder did get at least some health care, racking up $400,000 in unpaid medical bills before he died. A fundraising effort after his death -- the charity approach advocated by Paul -- produced only $35,000 toward paying off those bills.

That’s not an unusual story. … [Patients such as Snyder don't] come close to having the resources to pay off their bills. But somebody paid them. You did, and I did, and we paid Kent Snyder’s bill as well. It’s a convoluted, extremely irrational, unnecessarily expensive and inefficient system, and the only two approaches that show any promise of rationalizing it are the individual mandate or single-payer.
When Bookman writes that "we paid Kent Snyder's bill," what he means is that Snyder's bill was absorbed into the rate structure that all of us who have health insurance support. We pay for all the Snyders by increased premiums and increased co-pays.

What such situations point out to me is that many people in our political system are driven by an ideology that ignores the reality of our lives. Nowhere is this more apparent than in the health care debate. The indisputable fact is that the U.S. is alone among the advanced societies in failing to assure that health care is available to all its citizens.

Access to health care is controlled mostly by health insurance corporations and pharmaceutical giants so that these companies can rake off large profits at the expense of 50 million Americans who do not have insurance, as well as at the expense of every policy-holder.

One of those Americans without health insurance is a friend of mine who has had to take out crushing loans that could leave him penniless to pay for two essential surgeries and other medical procedures as a result of accidental injuries he sustained doing a good deed for another person. He can't afford health insurance in the present system. Where are the churches that Ron Paul touts as the solution? Where is the compassion?

For the same amount of money we spend in this country for health care and health insurance, we could cover those 50 million uninsured and an equal number of poorly insured with one simple reform -- a single-payer system. What we would miss out on is paying millions of dollars to health insurance and pharmaceutical companies to enrich their stockholders and executives for a service that adds nothing to the nation's well-being and could be provided better by a single-payer system.

They have rigged our system with appeals to the kind of libertarian arguments made by Paul and others, while 45,000 Americans die needlessly each year because they can’t afford health insurance.

The U.S. health care system ranks 37th in the world in its quality of care and its efficiency according to the World Health Organization. It is this way only because too many people have bought the lie that we have a free enterprise system, which is falsely seen by them as the greatest idea in the world, more important even than all the world's religions.

But we don't have a free enterprise system. We have a cooperative enterprise system, and that system does not serve the people well when it comes to health care.

It is the government’s responsibility, acting on behalf of the people, to make our society work for the people’s benefit when any system becomes dysfunctional. When that dysfunctionality results in the unnecessary deaths of tens of thousands of Americans each year, that responsibility becomes an imperative.

I am not advocating that government pay everyone's health care bill. I am advocating that government help create a health care system that everyone can afford to participate in. That's not socialism, as some falsely charge; it's American democracy.

For nearly 100 million Americans with no health insurance or inadequate coverage, having meaningful health insurance reform will do more than almost anything else to assure that the promises of the Constitution are fulfilled.

It is past time for us to have a government of, by, and for the people, not of, by, and for the giant corporations who now control access to the health care system. When ideology prevents our system of government from working as was intended by the founders, its adherents are ideologues, not patriots.

[Lamar W. Hankins, a former San Marcos, Texas, city attorney, is also a columnist for the San Marcos Mercury. This article © Freethought San Marcos, Lamar W. Hankins. Read more articles by Lamar W. Hankins on The Rag Blog.]

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07 September 2011

Sarito Carol Neiman : Healthcare on the Ground II: The Angels

Nurse as guardian angel? Art by Amy Jordan / folkartblondes's photostream / Flickr.

Shredding the envelope:
Healthcare on the ground – Part II
The angels are the ones who are doing more than just their jobs.
By Sarito Carol Neiman / The Rag Blog / September 7, 2011

[Shredding the Envelope ("Ruminations on news, taboos, and space beyond time") is Sarito Carol Neiman's (occasionally) regular column for The Rag Blog. This is the second in a series. Read Part I here.]

My brother called them “angels” in his email dispatches from the surgery waiting room. By this, I know now that he meant the ones who look you in the eye, who respond to your questions directly and without evasion. Without hollow boilerplate responses, meant to reassure those anxiously awaiting some news or a verdict that nobody yet has.

The angels are the ones who are doing more than just their jobs.

Being a guy, and more specifically a guy who loves understanding the workings of things, my brother was also impressed by the airport-like, huge computer display on the wall of the waiting room that showed which operating room was occupied by which surgeon, how much longer it was expected to be in use… it functioned as a reassurance in itself, like the clock displays on the crosstown Manhattan L line that tell you how many minutes away a train is from where you’re standing.

He and my sister… and whoever else might have been there from the family (who will no doubt forgive me for not remembering just now)... could watch, as the slot representing Dad kept getting extended. From the initial four to a total of seven hours, by the time it was all said and done.

Scott & White has a reputation for being one of the best in Texas. High-tech, computerized in all its dimensions, there is a mini-version of air traffic control opposite each nursing station, where selected vital signs of each patient in each room are on live display, broadcast from a little monitor each of them wears (or not, as needed, I assume) in a pocket sewn into their gowns, with its wires and sensors silently attached to their bodies and capturing heartbeat, respirations, temperature. When a nurse comes into the room, tasks completed and supplementary notes are entered via keyboard and screen attached to the wall next to the door, not on the iconic hospital “clipboard.”

All very reassuring, even laudable. But for the patients themselves, and their families, it’s the angels who count.

I have met many, so far, in the course of this journey. I’d say the majority of them have been “new”… interns, nurses in training, residents. (Maybe “the system” tends to beat angelhood out of people who are in it too long. I sense I should camouflage their names to protect their innocence.)

R, whose extraordinary sensitivity and respect toward Dad, on what had started as a really difficult day, seemed to help him tap into a new reservoir of strength within himself to turn things around by the end of the day.

B, whose eagerness to learn and clear enthusiasm for finding out what was broken and fixing it was so infectious, it earned him immediate forgivenesss for stepping on Dad’s toe the first time he approached his chair. When he came in the next day, clearly with an “assignment” to ask the patient a couple of questions, I saw B’s future as a great among angels reflected in my Dad’s honest, simple responses.

Dad is generally the sort of guy who will say “I’m fine” while bleeding to death from a gunshot wound. He’s also very perceptive. If he figures you don’t REALLY want to know, he will say, “I’m fine.”

B stood exactly in front of Dad, looked him in the eye, and said:

B: “Do you have any questions at all about your treatment that haven’t been answered?”

Dad: “I don’t know what’s wrong with me.”

B: [Clear, simple response to describe Dad’s condition, and the surgery he had just undergone, and why. A nod from Dad. Understood, at last, beyond whatever descriptions he had been given, and had only abstractly/theoretically comprehended, before he went under the knife.] "Is there anything else you want to know?"

Dad: "Why am I not getting better?"

To which B responded that it takes time, it had been a huge ordeal, and actually Dad was doing remarkably well under the circumstances, better even than might be expected. Other people had said the same words, but B really knew those words were true. For the first time, Dad had been told the reality as certainly as it could be known, by a person so transparently honest and sincere that he could take a deep breath and move on to crossing the next river.

There are angels among the oldtimers, as well. Notably “Ida sweet as apple cidah” as Dad introduced her to me (referencing an old song he knows), an ageless woman with a huge presence that just lights up the room when she walks in. I don’t feel the need to protect her innocence, because her face tells you she’s seen it all – and I’m pretty sure the gods of the nursing angels have her under their fiercest protection, or she wouldn’t still be around. Just as she has all “her” patients under her protection, to the extent she’s able.

Or T, who hasn’t yet seen it all but has seen a lot for someone as young as she is, and who doesn’t have such a big sunny presence as Ida but is more the silent and subtle breeze who comes and goes without creating a disturbance, and whose eye never misses the smallest detail of expression on a face indicating that something might be amiss. She catches things even before they happen, an invaluable gift.

Most angels seem to live toward the middle of the healthcare food chain – they are the nurses, or the interns and residents who haven’t yet been professionalized into wearing the straightjacket of “lawsuit aversion” so many doctors seem to have around them, like an invisible shield against genuine human contact.

On the bottom of the food chain are those who are just passing through a minimum-wage job until they can find something better. There are notable, and wonderful exceptions to the “check it off the list” insensitivity of many aides in the modern, large-hospital system. Those exceptions, in my experience of them, are very special angels indeed. Just really, really good folks who love taking care of people and their environments, and making both the person and the environment as comfortable as possible. We should pay them what they deserve, so they can keep doing that priceless work without having to take a second job to support their families.

I feel a third part to this series coming on. And that is to take a look at what are the “anti-angel” forces at work in the system. What they are made of, both on a “systemic” and a human level. It’s going to need a bit of research on the system level (nothing fancy) and maybe a bit more distance on the human level than I can manage right now.

Right now, I need to get back to my Dad’s room in the hospital, and make sure he has something to eat that he enjoys for “dinner” (in real life outside the hospital, dinner for my Dad is usually a light snack. Hospital “nutrition departments” don’t operate in that mode.) And that he’s settled in comfortably for the night.

I’ll be back.

[Sarito Carol Neiman (then just “Carol”) was a founding editor of The Rag in 1966 Austin, and later edited New Left Notes, the national newspaper of Students for a Democratic Society (SDS). With then-husband Greg Calvert, Neiman co-authored one of the seminal books of the New Left era, A Disrupted History: The New Left and the New Capitalism and later compiled and edited the contemporary Buddhist mystic Osho’s posthumous Authobiography of a Spiritually Incorrect Mystic. Neiman, also an actress and stage director, currently lives in Junction, Texas. Read more articles by Sarito Carol Neiman on The Rag Blog]The Rag Blog

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